Scleroderma Manitoba

June Awareness Walk results ! 


Our June 2019 awareness walk was highly successful! Thanks to the generosity of our participants and donors, we raised over $30,000. This success will enable us to contribute $20,000 to the Health Sciences Centre.


There are currently two major protocols for stem cell transplants, one that involves very high doses of cyclophosphamide while the alternate protocol uses lower doses of cyclophosphamide combined with radiation treatment. It appears the protocol using radiation may be less toxic to the patients and possibly more effective.


The current project we are supporting, led by Dr. David Robinson, is the set up of the more effective protocol to provide a better treatment for scleroderma patients in Manitoba. 



For answers to your questions, please read the F.A.Q.


New data presented at the American Thoracic Society Conference showed nintedanib slows loss of pulmonary function in people living with systemic sclerosis associated ILD

Burlington, Ontario, May 27, 2019 – Results from a pivotal Phase III SENSCIS® trial met its primary endpoint: reduction in the annual rate of decline in forced vital capacity (FVC) in patients with systemic sclerosis associated interstitial lung disease (SSc-ILD). Interstitial lung disease (ILD) is a key driver of mortality in people living with systemic sclerosis (SSc) – also known as scleroderma – and the absence of treatment options constitutes a high unmet need.

Results show that nintedanib slows the loss of pulmonary function in patients with SSc-ILD compared to placebo. Patients taking nintedanib showed a 44% reduction in the rate of decline of their lung function, measured in FVC assessed over 52 weeks. These new data were published in the New England Journal of Medicine (NEJM)  and presented simultaneously to the medical community at the American Thoracic Society (ATS) International Conference on May 20th in Dallas. Read more! 

To learn more about our financial support to research, please click here.
Check out our latest publications, available for free download, please click here.

Website last updated on: August 8, 2019