2021 Scleroderma Manitoba Annual General Meeting
September 25th at 10:30 a.m. CDT, followed by our regular Support Group meeting
The Annual General Meeting will provide an update for the Scleroderma Manitoba community on the activities and priorities of Scleroderma Manitoba. Board members will give brief reports and present some motions for vote.
Learn more about the organization and make your voice heard. See the AGM agenda here.
Caregivers, partners, friends, family members and supporters are all welcome to attend this virtual meeting.
Please register in advance for the AGM and Support Group meeting by clicking here. After registering, you will receive a confirmation email containing information about how to join the meeting. If you have any questions, please email firstname.lastname@example.org or call 204 510-2855.
The September Support Group meeting will follow the AGM and feature the experiences of three people living with scleroderma. Sarah, Helen and Craig, “Experts by Experience”, will share their scleroderma journeys during a panel discussion, with a Q & A to follow. One of the best ways to learn about scleroderma is to hear from others who are living with this disease.
Your commitment to Scleroderma Manitoba is a continuing source of hope.
Information and applications for Research and Professional Development grants are available here.
Application deadline for both grants is October 1st, 2021.
The Rhapsody will be used to establish the immune identity… of (an) individual scleroderma patient.”
Whether you are newly diagnosed or have been living with scleroderma for some time, or if your spouse or partner, child, parent, or family member has been diagnosed with scleroderma, or if your friend, co-worker, or employee has scleroderma, YOU are a part of the scleroderma community in Manitoba.
This site is here to help you find support and to learn more about scleroderma, current research, advocacy and ways to volunteer.
The Spring-Summer edition of The Bulletin has arrived. Click here for details.
Scleroderma Manitoba hosts support groups for scleroderma patients, their families and their supporters.
We are now holding online support groups due to Covid-19.
To learn more, click here.
Read more about Scleroderma Manitoba and its Mission here.
Find the latest information on scleroderma research here.
Scleroderma (systemic sclerosis or SSc) is a largely misunderstood chronic disease affecting about approximately 22,000 Canadian and five to six times more women than men are affected by this disease.Scleroderma is an autoimmune disease, a condition in which a person’s immune system turns against itself by producing antibodies that attack its own tissues (i.e. autoantibodies).This disease is derived from the Greek words “skleros” (hard) and “derma” (skin) and is characterized by progressive skin hardening.Scleroderma is characterized by an overproduction of collagen and damage to the blood vessels that causes excessive scarring within the various organs. This imbalance leads to a hardening of the skin (fibrosis) and an alteration of the affected organs.
Moreover, in most cases, scleroderma limits the motor skills and dexterity of those affected and causes great physical and psychological suffering since it produces disfiguring appearance-related changes. Learn more.
Last updated August 2021