Scleroderma Manitoba is grateful to all who were able to donate to our cause on Giving Tuesday.
Three new members joined the Board at the AGM in September and three others have moved on. We welcome Mridul Bhargava (Treasurer) Linda Cassell (Member-at-large) and Theresa Sabi (Member-at-large) to the board and say thank you to Lisa Thiessen, Crystal Smith, Ana Mariá Rojas for your service.
Jo-Ann LaPointe McKenzie has agreed to stay on temporarily as President until a new volunteer steps forward. Scleroderma Manitoba is grateful for Jo-Ann’s commitment to the organization – she’s a tremendous person!
In addition to President, the Board currently has two other vacancies to fill: Vice-president and a Member-at-large, hopefully one who has a background in education or fundraising.
If this sounds like you or someone you know, or you’d like more information, email us at email@example.com or call 204 510-2855.
The Fall-Winter 2023 Bulletin has arrived!
Enrollment is now open for SPIN’s scleroderma self-management program. SPIN-SELF is a program designed to provide knowledge and skills for managing physical, emotional and social consequenses of scleroderma.
Participants get access to 9 self-management modules and receive $100.
Visit the SPIN website to learn more.
We continue to add new information sheets related to living with scleroderma and now Scleroderma Quebec has provided us with French versions as well.
Alex Tahimic’s story of his late mom and how he ran the 2023 Manitoba Marathon in her memory has been added to the other stories of scleroderma patients and caregivers.
Take a moment to watch Alex’s video and read the other stories here.
Scleroderma News is “The Web’s Daily Resource for Scleroderma News.”
It’s a good site to bookmark for the latest in research and information about scleroderma.
Scleroderma Manitoba hosts support groups for scleroderma patients, their families, and their supporters.
We are holding online support groups due to Covid-19, but hope to return to in-person meetings some time in 2024.
Upcoming meeting dates and details are available here.
Find summaries and resources from previous meetings on the Support Group page.
Information and applications for Research and Professional Development grants are available here.
Brett Thombs, Director of the Scleroderma Patient-centered Intervention Network (SPIN) has written a letter of thanks to our scleroderma community regarding COVID-related research.
Whether you are newly diagnosed or have been living with scleroderma for some time, or if your spouse or partner, child, parent, or family member has been diagnosed with scleroderma, or if your friend, co-worker, or employee has scleroderma, YOU are a part of the scleroderma community in Manitoba.
This site is here to help you find support and to learn more about scleroderma, current research, advocacy and ways to volunteer.
The Fall/Winter edition of The Bulletin has arrived. Click here for details.
Read more about Scleroderma Manitoba and its Mission here.
Find the latest information on scleroderma research here.
Scleroderma (systemic sclerosis or SSc) is a largely misunderstood chronic disease affecting about approximately 22,000 Canadian and five to six times more women than men are affected by this disease.
Scleroderma is an autoimmune disease, a condition in which a person’s immune system turns against itself by producing antibodies that attack its own tissues (i.e. autoantibodies).
The word “scleroderma” is derived from the Greek words “skleros” (hard) and “derma” (skin) and is characterized by progressive skin hardening.
Scleroderma is characterized by an overproduction of collagen and damage to the blood vessels that causes excessive scarring within the various organs. This imbalance leads to a hardening of the skin (fibrosis) and an alteration of the affected organs.
Moreover, in most cases scleroderma limits the motor skills and dexterity of those affected and causes great physical and psychological suffering since it produces disfiguring appearance-related changes. Learn more.