About Scleroderma >
Blog >
+ info

Blog

We have adapted in a changing World 

In light of the situation with COVID-19, Manitoba’s 6th Annual Walk for Scleroderma format has changed.

Scleroderma Manitoba will be following the government’s guidelines and will not be holding the walk at St Vital Park, as it has been for the previous 5 years. Since it is still very important to raise awareness & funds, we have come up with an alternative.

Please register as you normally would ($0 registration fee) for this year’s virtual event and commit to walking, running or riding a bike for a total of 1K or 5K from June 1st to World Scleroderma Day on June 29th.

Commit to the distance & keep your own tally throughout the month. It is not necessary to complete the entire distance all at one time. This way you can walk at your own pace in a safe setting, all while practicing social distancing.

Register with a team or as an individual.

Once you are registered, please promote yourself on your social media to ask for donations or people to join you, as you have done in the past.

If you have one, please wear your t-shirt from any of the previous years while out walking, to raise awareness.

The fun continues afterwards when everyone shares how they participated, so make sure to take pictures or videos and send them to us via email to sclerodermamb@gmail.com. Include your location and any other details you would like to provide. Also, please tag our Facebook page.

Keep checking in for updated information.

***************************************************************************

 

Scleroderma Manitoba

June Awareness Walk results !

Our June 2019 awareness walk was highly successful! Thanks to the generosity of our participants and donors, we raised over $30,000. This success enabled us to contribute $20,000 to the Health Sciences Centre.

View more photos

There are currently two major protocols for stem cell transplants, one that involves very high doses of cyclophosphamide while the alternate protocol uses lower doses of cyclophosphamide combined with radiation treatment. It appears the protocol using radiation may be less toxic to the patients and possibly more effective.

 

The current project we are supporting, led by Dr. David Robinson, is the set up of the more effective protocol to provide a better treatment for scleroderma patients in Manitoba.