Helping you connect
Although every scleroderma patient’s experience is unique, there is a lot of value in connecting with and learning from each other. Scleroderma Manitoba provides several ways to connect with others who are experiencing life with scleroderma:
Scleroderma Manitoba hosts support groups for scleroderma patients and their families and supporters. To learn more, click here.
We are now holding online support groups due to Covid-19.
Special events give you access to presentations and meetings with physicians and other scleroderma specialists. In addition to guest speakers at some of our support groups, Scleroderma MB hosts an annual Education Conference giving you an opportunity to learn and ask questions directly to the specialists.
For a summary and video link of the Scleroderma Manitoba Education Conference and AGM, held on October 3, 2020, please click here.
Participate in our annual walk to raise awareness and funds for scleroderma research. We hold a walk each year during June – Scleroderma Awareness Month. This helps us come together as a community to have some fun, raise awareness of the disease, and funds for much-needed research. To learn more click here.
Register with us to receive our semi-annual magazine The Bulletin.
Keep updated with new research and activities of the Board of Scleroderma Manitoba relevant to you through our local newsletter.
Scleroderma MB exists to support the scleroderma community in Manitoba. Become involved, help to move some of our initiatives forward, and get to know the community better by volunteering.
Have a voice in the organization. Scleroderma MB holds an annual general meeting each year, which offers you a chance to learn about the priorities of the organization, meet the Board of Directors, and have your say. For minutes of the latest AGM, click here.
Support the local community by making a donation. Funds raised by Scleroderma Manitoba are directed toward research, education and patient support.
Whether you are a patient, family member, caregiver or supporter of someone with scleroderma, we ask that you register as a member (registration is free). We ask for registration so that we have current and correct information about the scleroderma community in Manitoba. This allows us to communicate with you more effectively, and also informs our decision making with regard to our priorities, where research funding should be directed, and leads to better advocacy.
To register as a member (no-charge), click here.
Connect with Us
Scleroderma Manitoba can also be found on Facebook and Twitter where we post updates about upcoming events and information about living with scleroderma. Contact us by email at firstname.lastname@example.org.
Remember, you are not alone!