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Living with scleroderma | Conditions, treatments, and therapies
Organizations | Research and support networks
A video from ScleroCare
ScleroCare is an online app that was designed for Canadian scleroderma patients. Users are able to find community, support, and individualized answers.
It connects patients with local resources, hosting forums, personal messaging systems, and educational material. Patients are also encouraged to use their medical résumé tool, to help with medical visits. ScleroCare regularly updates their site.
Please take the time to watch this walk through video on how to use the ScleroCare app.
About ScleroCare
ScleroCare“started as a student project, driven by passion and a commitment to improving care for those with scleroderma. With support from the Scleroderma Society of Ontario, it evolved into a platform offering tailored resources and community support.”
“At ScleroCare, we’re devoted to empowering those with scleroderma by fostering connections, and providing accessible, community-driven resources for support.”
University of Cambridge Long-term Conditions Research Group Research Webinar
This webinar covers findings from studies exploring patients’ diagnostic journeys, patient-clinician communication, the impact of autoimmune diseases on patient lives, patient experiences of adapting to life with their disease, mental health, inequalities in care and menopause.