Who we are
About Scleroderma Manitoba
Whether you are newly diagnosed, or have been living with scleroderma for some time, whether your spouse or partner, child, parent, or family member has been diagnosed with scleroderma, or if your friend, co-worker, or employee has scleroderma, YOU are a part of the scleroderma community in Manitoba.
A diagnosis of scleroderma is scary. That’s why it’s important to learn as much as you can, and connect with others who understand what you are going through. Scleroderma Manitoba is committed to helping you connect in whatever ways you feel most comfortable.
*New info available about COVID-19 vaccination for scleroderma patients here.
Scleroderma Manitoba was founded in 1993 by Harriet Carter, who had been diagnosed with scleroderma. Scleroderma Manitoba is an all-volunteer, registered charity created to support patients and their families.
Working on several fronts, Scleroderma Manitoba has a three-fold mission:
- Support scleroderma patients by promoting patient outreach and education
- Raise public awareness and developing information tools for the general public and stakeholders in the medical community
- Encourage and support leading edge research in Manitoba and Canada
Scleroderma Manitoba advocates for the scleroderma community across the province and is committed to promoting disease awareness and improving the quality of life for all patients. Through advocacy, we aim to raise public awareness and rally support around the issues affecting the scleroderma community (eg. access to medications) to ensure our voice is heard and needs are met by government decision-makers. Scleroderma Manitoba not only serves as a support for scleroderma patients and their families, but also advocates with other associations, such as the Pulmonary Hypertension Association of Canada, for those who are affected by other diseases.
To learn more about the activities of Scleroderma Manitoba, click here.
To review the laws and bylaws of Scleroderma Manitoba please click here.