Sample scripts and templates for fundraisers
June is our Annual Walk/Run/Ride Fundraiser leading up to
World Scleroderma Day June 29th
Here are samples of scripts you can use to help you be as successful as possible in your fundraising efforts.
Download a Word version here.
Sample emails – invitation to join your team
Suggested subject lines
Help Me raise funds for Scleroderma Research and Patient Support
In Honor of my << family member, friend, etc. >>, Help Me Support Scleroderma Manitoba
June is Scleroderma Awareness Month – Join or Donate to the Scleroderma Manitoba Walk/Move 2023
Script templates
Option 1: Person with Scleroderma
#1
I live with Scleroderma and cope with the daily challenges this rare disease presents. Scleroderma Manitoba (SclMB) supports patients like me and my family with education about the disease and support to live our best possible life.
SclMB provides grants for important research to diagnose, treat and perhaps eventually cure this disease.
During our annual fundraiser in June, please consider joining my virtual walk/move team!
This fundraiser ends June 30 following World Scleroderma Day June 29, 2023.
My goal is: to walk/run/bike << >>kms/ or swim for 30 minutes three times a week or attend Zumba class twice a week or use your imagination
Support my walk here: << link to the CanadaHelps.org donation page >>
#2
Help me walk to raise funds for Scleroderma Manitoba!
In June, I am participating in the Scleroderma Manitoba Virtual Walk/Move.
Collectively, we are hoping to raise $30,00.00 for research and education.
I have committed to walk/move<< >> km (insert what your plan is) to help to raise awareness and funds for scleroderma research and patient support in Manitoba.
Please show your support by joining my team – adding your kms to mine!
<< link to your Canada Helps Team page >> or by making a donation.
Option 2: Family member, friend or colleague of a person who lives with Scleroderma
My << mother, father, sister, friend, colleague >> lives with Scleroderma; coping with the daily challenges this rare disease presents.
Scleroderma Manitoba supports patients like my << mother, father, sister, friend, colleague >> and their families with education about the disease and support to live their best life possible.
Scleroderma Manitoba provide grants for important research in Manitoba and Canada to diagnose, treat and eventually cure this disease.
Collectively, we are hoping to raise $30,000.00 for research and education.
I have committed walk/move << >> km (insert what your plan is) to help in this effort in Manitoba.
Please show your support by registering to walk individually or joining my team: << link to your Canada Helps Team page >> or by making a donation.
Sharing on social media
We know that it is helpful to make posts on social media, e.g., Facebook, throughout the month to encourage members of your team.
Here are some sample scripts you can use or modify to reflect a more personal message:
Social Media Tips
Make it personal. Mention the weather, what you are doing, who you’re doing it with, how much you are trying to accomplish, and your achievements.
Include a snippet of info about scleroderma. Examples are shown below.
You do not always need to ask for a donation, but you should always include the donation link. (You can just include the donation link at the bottom of the post without a specific request to donate.)
Use the hashtag #sclerombwalk consistently. Otherwise, think up your own silly hashtags!
You don’t have to post daily, but frequent posts really help to raise awareness and give you an opportunity to share small bits of info about this complex disease.
Sample scripts for Facebook
This is day << >> of Scleroderma Manitoba’s annual fundraiser. Our goal to walk/move throughout the month of June. Scleroderma is a serious, rare auto-immune disease that affects both internal body systems as well as the skin. These changes have a huge impact on the lives of patients and their families. Thank you for supporting me in this important virtual event.
To learn more about scleroderma, visit sclerodermamanitoba.com. If you’d like to donate, or join Team _______________, visit: << link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day << >> of Scleroderma Awareness Month in the Scleroderma Manitoba Virtual Walk to raise awareness and funds for scleroderma research and patient support. It is estimated there are between 330 and 350 scleroderma patients in Manitoba, with a higher prevalence in eastern and northern regions. Let’s get moving so we can reach our goal of $30,000.00! To learn more about scleroderma, visit sclerodermamanitoba.com. << link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day << >> of our Walk for Scleroderma to raise funds and awareness of this rare disease.
Scleroderma is an auto-immune disease which affects about 300,000 in the US and 40,000 in Canada. About 80% of those living with scleroderma are women. Together we can make a difference.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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This is day << >> of the 2023 Scleroderma Manitoba Virtual Walk/Move to raise awareness, and funds for research and patient support.
Scleroderma is not really a single disease, but rather a group of diseases involving the abnormal growth of connective tissue, the tissue that supports our skin and internal organs. It is an autoimmune disease, where your immune system turns against your own body.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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This is Day << >> of Scleroderma Awareness Month and our virtual walk/move event. We are raising awareness about and funds for scleroderma research and patient support in Manitoba. Increased awareness leads to better treatment, more funds for research, more research trials, and better advocacy for scleroderma patients and their families. To learn more about scleroderma, visit sclerodermamanitoba.com.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Joined by great friends on Day << >> of Scleroderma Awareness Month – walking/moving to raise awareness and funds for scleroderma research and patient support in Manitoba. There has been progress over the last 20 years – new treatments have become available just since I was diagnosed << >> years ago, which is great news. Continued research is critical to find more effective treatments and hopefully one day, a cure.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Setting out to << walk/bike/swim >> on Day << >> of Scleroderma Awareness Month, to raise awareness of, and funds for scleroderma research and patient support.
Scleroderma, also called systemic sclerosis, affects 40,000 Canadians and is a type of autoimmune disease that impacts connective tissue. Many autoimmune diseases cause inflammation and pain in muscles, joints or fibrous tissues. The name itself comes from the Greek words sclero, meaning hard, and derma, meaning skin.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day<< >> of Scleroderma Awareness Month to raise awareness, and funds for scleroderma research and patient support. While scleroderma can be found in every age group, from infants to the very old, 88% of people are women between the ages of 30-50.
For more information visit sclerodermamanitoba.com. << link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day << >> of Scleroderma Awareness Month. This year I am participating in the Walk/Move for Scleroderma Manitoba. Collectively, we are hoping to raise $30,000.00. I have committed to walk/bike/swim << >> km to help in this effort to raise awareness and funds for scleroderma research and patient support in Manitoba. Please show your support for scleroderma patients across Manitoba by joining my team: << link to your Canada Helps Team page >> or donating.
#sclerodermaAwareness #sclerombwalk
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Day << >> of the 2023 Walk/Move for Scleroderma Manitoba virtual event to raise awareness and funds for Scleroderma research. In scleroderma, an overactive immune system produces too much collagen and causes small blood vessels to narrow or even close. This can damage hands, skin, joints, the heart, GI system, lungs and other parts of the body.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day << >> of Scleroderma Awareness Month. I am walking each day in the Scleroderma Manitoba Virtual walk to raise funds and awareness for research and patient support. Scleroderma is a rare auto-immune disease, but it’s been around a long time. It was first diagnosed in 1754.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Biking on a windy/sunny/cloudy/warm/cool Manitoba day on Day << >> of the Walk/Move for Scleroderma Manitoba Virtual event to raise awareness and funds for research and patient support.
To date we have collectively raised << >> of our goal of $30,000.00. Scleroderma can cause stiffening of the hands and joints, making everyday tasks like getting dressed and cooking more difficult for patients.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day << >> of the Walk/Move for Scleroderma Manitoba Virtual Event. Collectively, we are trying to raise $30,000.00. I am working on my walk goal of << >>kms.
Scleroderma results from an overproduction and accumulation of collagen in body tissues. Collagen is a fibrous type of protein that makes up your body’s connective tissues, including your skin. Doctors don’t know exactly what causes the abnormal collagen production to begin, but the body’s immune system appears to play a role. Most likely, scleroderma is caused by a combination of factors, including immune system irregularities, genetics and environmental triggers.
To donate: << link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day 15 – halfway through #SclerodermaAwarenessMonth. I am walking in the Walk/Move for Scleroderma Manitoba’s Virtual Event to raise awareness and funds for scleroderma research and patient support. Scleroderma affects everyone differently and can affect many different areas of the body. For example, it can cause Pulmonary Fibrosis – a potentially serious complication where normal lung tissue is gradually replaced by scarred fibrotic tissue, making it difficult to breathe and deliver needed oxygen to the body. Pulmonary fibrosis causes shortness of breath and also sometimes a dry cough.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day << >> of Walk/Move for Scleroderma Manitoba’s Virtual Event to raise awareness, and funds for scleroderma research. One of the most common manifestations of scleroderma (affecting up to 95% of patients) is RAYNAUD’S PHENOMENON. While almost all scleroderma patients have Raynaud’s, very few people with Raynaud’s have scleroderma.
In scleroderma, Raynaud’s is a secondary disease, caused by constriction of the blood vessels which is triggered by cold or severe stress. This leads to whitening of fingers and/or toes, followed by a blue phase and then a red phase. Significant Raynaud’s often leads to ulcers on fingers or toes, which are very painful, and take a long time to heal.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day << >> of the Virtual Walk/Move for Scleroderma Manitoba.
Some more Scleroderma facts: Scleroderma affects the skin in various ways. Along with hardening due to an over-production of collagen, some of us living with scleroderma experience telangiectasia which are small, dilated capillaries visible on the face and hands. About one-third of scleroderma patients experience changes in skin pigmentation, where dark or pale spots occur. So, in addition to reduced mobility and health concerns, scleroderma significantly impacts your appearance, which can have a big emotional impact.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
Walking on Day << >> of #SclerodermaAwarenessMonth, in the Walk/Move for Scleroderma Manitoba Virtual Event to raise awareness and funds for research that will hopefully some day lead to a cure.
Some scleroderma patients experience Calcinosis – Calcium deposits under the skin that can occur almost anywhere on the body. They may require antibiotics to cure occasional infections, and sometimes surgery to drain the calcium deposit and relieve pain.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
_________________
Walking on Day << >> of the Walk/Move for Scleroderma Manitoba Virtual Event to raise awareness and funds for scleroderma research and patient support.
Scleroderma is difficult to diagnose, sometimes taking several years. It is diagnosed on the basis of the symptoms, the patient’s history, as well as blood tests and skin biopsies. There is no cure at this time, and dealing with it can involve rheumatologists, respirologists, gastroenterologists, cardiologists, and nephrologists depending on which organs are affected.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day << >> of #SclerodermaAwarenessMonth in the Walk/Move for Scleroderma Manitoba Virtual Event to raise awareness and funds for research and patient support.
One of the more uncomfortable realities of scleroderma – Gastrointestinal disorders- affect the vast majority of patients. Gastric reflux or heartburn is a common symptom that manifests itself by a burning sensation radiating up to the throat after meals and may cause inflammation of the lining of the esophagus (esophagitis reflux) if left untreated.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day 20 of #SclerodermaAwarenessMonth, I am walking in the Walk/Move for Scleroderma Manitoba Virtual Event to raise awareness and funds for research and patient support.
Today on Father’s Day, it is important to remember that like any disease, the families and partners of scleroderma patients are also living with the disease.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Walking on Day << >> of the Walk/Move for Scleroderma Manitoba Virtual Event to raise awareness and funds for research into better treatments, perhaps a cure, and patient support.
Scleroderma is also a disease that affects the vessels and tissues that circulate blood in the body. Vascular disease affects blood flow, either by blocking or weakening blood vessels, or by damaging the valves that are found in veins. Organs may be damaged by vascular disease as a result of decreased or blocked blood flow.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day << >> of the Walk/Move for Scleroderma Manitoba Virtual Event to raise awareness and funds for research and patient support. Covid-19 is scary for those of us living with scleroderma. Scleroderma patients, particularly those with lung scarring and fibrosis, and those on immunosuppressant medication have reduced immunity. This makes us vulnerable to having more severe symptoms if we contract the Covid-19 virus.
So, it’s important for scleroderma patients and their friends, families and supporters to be vigilant, follow all the health and safety recommendations, and get a vaccine.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Today, on day << >> of #SclerodermaAwarenessMonth, I walked < describe location> to raise awareness and funds for #scleroderma research. Joint pain is common. It is caused by inflammation of the joints and tendons, which quite often leads to joint swelling and stiffness that can become quite debilitating. Muscular pain (myalgia) can be intermittent or continuous. It can also be associated with muscle weakness (myositis). Symptoms include difficulty in climbing stairs, lifting objects and getting up, and there can also be difficulty swallowing.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day << >> of Scleroderma Awareness Month and so far this month I have walked << kms >> to raise awareness and funds for research towards finding a cure and more effective treatments for #scleroderma. Regular exercise is especially important for people with scleroderma because it helps manage common symptoms such as fatigue, joint pain and stiffness, and stress. Since many people with scleroderma experience joint and muscles stiffness, low-impact activities like walking, cycling, swimming, yoga, dancing, water aerobics and Pilates are all good choices for activities. However, everyone with scleroderma is different, and so exercise intervention will be very person dependant.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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We are nearing the end of Scleroderma Awareness Month, and I am walking on Day << >> to raise awareness of scleroderma. Increasing awareness is critical in achieving more research and clinical trials that will hopefully lead to better treatments, and eventually a cure.
In scleroderma the hands can be affected, by sclerodactyly in which the skin of the fingers become infiltrated with collagen (fibrosis) and may look full and swollen. This can lead to functional loss or decreased range of motion, and can make it difficult to grip things, or make a fist. In addition, ulcers can occur on the fingertips or on the top of the fingers, which are painful and difficult to heal. In the most severe cases, amputation may be needed.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day << >> of Scleroderma Awareness Month. The scleroderma community in Manitoba has been walking/moving throughout June, and across Manitoba to raise awareness and funds for research and patient support. We are hoping to collectively raise $30,000.00; I have committed to walk << kms >>.
World Scleroderma Awareness Day is June 29. Having a disease that nobody has heard of is a lonely business. When even the doctors cannot recognize it, or can’t tell you what is going to happen, it is lonelier still. World Scleroderma Awareness Day was created to tell people, including the medical community, what it means to have this disease. June 29 is a day to raise awareness of this disease around the world and recognize those who live with scleroderma every day.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day 28 of the Walk/Move for Scleroderma Manitoba Virtual Event to raise awareness and funds for research and patient support. In February 2010, the 1st Systemic Sclerosis World Congress was held in Florence, Italy, with participants from countries from all over the world. At the world congress it was agreed that June 29th (tomorrow) would be celebrated as Scleroderma Awareness Day, and it has grown in significance around the world in the last 12 years.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Day 29 of #SclerodermaAwarenessMonth. I have been biking over the month of June as a participant in the Walk/Move for Scleroderma Manitoba Virtual Event to raise awareness and funds for research toward better treatments, and hopefully one day a cure. Today is World Scleroderma Awareness Day. Why June 29? The gifted Swiss artist Paul Klee made painting his life’s work, but it was strongly influenced by his illness, systemic scleroderma. June 29th coincides with the date of the artist’s death – June 29, 1940.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
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Today is Day 30, and the LAST day of the Scleroderma Manitoba fundraiser. I was able to walk << kms >> over the month of June to raise awareness and funds for research, education and patient support. Greater awareness is key to better funding for research and improved treatments, better knowledge in the medical community, and making sure that people living with scleroderma know they are not alone.
A special thank you to Team << name >>. I am filled with gratitude for your support. Thank you to all of you who walked, made donations and sent encouraging words. I am grateful to all of you who took the time to spread the word about scleroderma through sharing my posts or making your own.
<< link to your Canada Helps Team page >>
#sclerodermaAwareness #sclerombwalk
Thank you again!
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Twitter suggestions
#sclerodermaAwareness #sclerombwalk 9th Annual Walk/Move for Scleroderma Manitoba on Canada Helps
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June is Scleroderma Awareness Month. Join the Scleroderma MB community to walk, move to raise funds for research and patient support. Scleroderma is a rare autoimmune disease that affects 350 Manitobans.
#sclerodermaAwareness #sclerombwalk
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Help me to raise money to fund important research to one day cure Scleroderma.
#sclerodermaAwareness #sclerombwalk
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Join the #sclerodermaAwareness #sclerombwalk to walk, move in support of research, education and awareness. We are collectively raising funds for research and education. Join us.
#sclerodermaAwareness #sclerombwalk
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Connective Tissue disease affects the skin, joints, gut, lungs, kidneys, blood vessels.
#sclerodermaAwareness #sclerombwalk
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Disabilities caused by Scleroderma impact Partners and entire families.
#sclerodermaAwareness #sclerombwalk
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Joint pain, swelling and stiffness make many simple tasks difficult.
#sclerodermaAwareness #sclerombwalk
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Having a rare disease is lonely.
#sclerodermaAwareness #sclerombwalk is designed to help tell people what it means to have Scleroderma.
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June 29 is World Scleroderma Awareness Day. Artist Paul Klee died on this day in 1940 from Scleroderma.
#sclerodermaAwareness #sclerombwalk
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Awareness brings funding for research, improved treatments, and better understanding of Scleroderma.
#sclerodermaAwareness #sclerombwalk
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Damaged blood vessels cause sores on fingers and toes that are slow to heal and lead to amputations.
#sclerodermaAwareness #sclerombwalk
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Pulmonary fibrosis & hypertension cause shortness of breath, chronic cough, and the need for oxygen.
#sclerodermaAwareness #sclerombwalk
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Damaged blood vessels cause sores on fingers and toes that are slow to heal and lead to amputations.
#sclerodermaAwareness #sclerombwalk
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Raynaud’s affects 95% of Scleroderma patients and can lead to painful ulcers on fingers and toes.
#sclerodermaAwareness #sclerombwalk
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A Scleroderma diagnosis is based on symptoms, blood tests & skin biopsies. Research can find a cure.
#sclerodermaAwareness #sclerombwalk
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Calcium deposits occur all over the body and need treatment to drain the deposit and relieve pain.
#sclerodermaAwareness #sclerombwalk
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Suggestions for Thank you messages/emails
At the end of the month as the fundraising campaign winds up, it is important to acknowledge those who have helped along the way. Here are some ways to say “Thank you”:
Sample 'Thank you' messages
Scleroderma Manitoba holds one major fundraising event each year. Your participation in our Walk/Move for Scleroderma Manitoba Virtual Event has been critical to our success.
The funds raised are allocated to patient support and research that impacts the care and treatment of Manitobans with Scleroderma.
The Scleroderma Community in Manitoba is grateful to you for your support and for helping us get closer to our ultimate goal of finding a cure. Thank you!
_________________
Every person who lives with Scleroderma works hard to find a balance between managing their disease and living a good quality of life.
The funds raised by this annual Walk/Move for Scleroderma Manitoba Virtual Event are so important in helping us to find a cure for this devastating disease.
Thank you for your contribution and for participating in the 9th Annual Scleroderma Awareness month.
_________________
We are so grateful that you found it in your heart to reach out and support the Scleroderma Manitoba community.
The funds we raise in our Annual Walk/Move for Scleroderma Manitoba Virtual Event are used support patients, and to provide research grants to benefit the patients and families of Manitoba.
We sincerely thank you for helping us raise awareness of Scleroderma, a disease that causes financial impacts, isolation, and perhaps even loss of a loved one. May we together “Look forward with hope.”
_________________
Thank you so much for your participation in Scleroderma Awareness month and our annual Walk/Move for Scleroderma Manitoba Virtual Event.
The funds raised by this event will be used for patient support and scleroderma research.
Together raised << $$ >>. We appreciate the role you played in helping reach these goals.
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