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Your Medical Care Management

When it comes to navigating the healthcare system and working with various medical professionals, keeping one’s medical information well-organized and easily accessible may be time-consuming.

To help you organize, track and catalogue your medical information successfully, we invite you to download the Healthcare Management Binder

Please note that the material in the Healthcare Management Binder is presented for general information only. It is not intended to substitute for informed medical advice. The binder is a resource that should be used in conjunction with one’s healthcare provider(s).

We sincerely hope that this binder serves as an easy and efficient tool in managing your overall healthcare experience. 

To learn more about the most common complications of scleroderma, we encourage you to familiarize yourself with the warning signs that you and your loved ones should regularly be watching for. Please refer to the brochure, What is scleroderma?

Prepare for your medical appointment 

To clearly articulate your condition to your doctor and avoid forgetting something important during your medical visit, here are some tips that will help you get answers to your questions. 

Before your visit

Write down all relevant information about your health and questions you want to ask:

It is important to make a long enough appointment that provides the opportunity for a thorough and in-depth discussion with your doctor. Remember to bring all your medications, including over-the-counter medications and any supplements you are taking.

Making Healthcare Decisions

With all this information and medical terms, how does one decide on the best course of treatment for them. SPIN has created a worksheet for you to compare options applying a perspective of risks and rewards for you. Maybe this can help you clarify what is possible and make your decision.